still no camera

And it is beginning to really piss me off. I cannot capture all those precious moments. I am lucky that I have a really clear picture phone, but I don't know how to upload them and I am worried I am going to lose them.

One particularly good moment that I missed was the Variety Christmas Party we went to on the weekend. B5 had such a lovely time and it would have been nice to capture his gorgeous smile, or Toadie from Neighbours doing the chicken dance with him. It was really wet and had to be held in a building they hadn't planned on, a lot of people had issues with the small space and the amount of rain we had, but hey, Mother Nature always wins. :)

We have been pretty quiet lately, I have been going to Monday night crafts as much as I can. B's embroidery is coming along nicely and it is a great way to release. Tonight is canceled though because of how much rain we are having.

Hmmm, is there a theme here. LOL. The rain has been constant since about Thursday last week so we are watching the creeks. We would be cut off if they both go over. It goes down pretty quickly I think because it feeds into the ocean. We are also lucky that our soil is mostly sand so it drains away easily.

Mr P is learning to drive and is doing a great job of it. I am really proud of how much effort he is putting in. He has been pretty scared about being in control of a car for such a long time as he has Epilepsy and could potentially have a seizure. He has been seizure free for over 3 years now and is essentially controlled with anti seizure medication. He has said that he feels more and more comfortable so that is a really big step for him. So yep, proud! :D

I have met a friend up here and we are having playdates which is really nice. H2 enjoys hanging out with their little girl too. We try to go to Wednesday Story time at the Library but have only made it once so far. H2 wasn't really sure what the deal was and preferred running around so maybe the playgroup would be better suited for a while. I am just a little tentative to go to a playgroup as I don't really enjoy competing with other Mother's. But then again, it may not be anything like that and we might have fun! Regardless, H2 is needing more friends.

Also I am flying out to spend an evening with my Special Mums and I can't wait, 2 weekends and I will be there baby!

Crust be gone and ummm, maybe call it LOVE?!

A 'Sarah Bean' got a certain birthday present and was particularly excited about the cornflour like powder that was a result of a Ped Egg! Since her birthday I had stored the pleasure she found in it and also the amazingly smooth feet that were a result, and I requested it as my one gift (I will be getting a tattoo as a combined Birthday/Christmas so am hanging out for that too).
Hmmm, yes Ped Egg!
I was intrigued to find out if my feet too produced a grotty cornflour, and yes they do! So gross, but you can't stop looking at it and swishing it about in the top part of the 'egg'. Ha! I love having smooth feet as we hardly wear shoes since being here!
I was so stoked that Mr P got me the gift I had asked for, one year he asked what I wanted, I said a dressing gown, I ended up getting a mug. Hmm. BTW I wasn't drinking tea or coffee at that time!
So, Ped egg = most awesome gift! :D


The other part of my pondering has to do with my young man.

I have been feeling a bit overwhelmed with a couple of things this week.
Have I done enough for his life to be rewarding, have a put enough effort in for him to grow as he needs to, have I given him the right foundation of skills.
I just know that parenting is hard, it is character building and to be honest having my son helped me realise an inner strength and wisdom that I never knew that I had. Every day, he tests my patience, my negotiating skills, my sense of humour, my love, all my fears, and in reality so does H(not 1 any more!)2. I think the biggest advantage is knowing how to be truely humble and thankful and I thank my children every day! I have now been on this journey for over 6 years, from conception that is. I am constantly in awe of the lesson's I have learnt and I am forever evolving. A life of not learning wouldn't be as rewarding as what I am living. I constantly saying that having a child with Down syndrome isn't bad, it is just different. When we are on our parenting journey it has it's up's and down's and no two families are on the same path. It then becomes sad for me that my son is questioned and just not able to 'be'. I feel that I am constantly having to step up and advocate for him. I will always be an advocate, I just wish there wasn't such ignorance and stereotyping attached to a disability that is constantly pushing the boundaries and exceeding the box that was once used to group my child.

One day ignorances won't be so judgmental and we can all get on with living. Here's hoping anyway.